Re another year 
Monday, 3 June, 2013, 02:53 PM
A few things have happened and I keep thinking I really should add that to my blog. I can hear almost as well on the second side, if my batteries run down on my right I can swap to my left while on the phone.

I can write things down and listen on the phone, so thing that was really hard to begin with but gets easier with time.

I can recognize some voices, others I have to work out who they are,

Some days I hear better than others, I put it down to a head cold.

The new processor really makes a difference, it's so much clearer. I can't wait to get a upgrade for my right ear in December 2013.

In my work I support a little babe who had a processor op back in March. Simple things that I can suggest to his mum such as how to set even a strong magnet so it does not touch the skin which can help with the reduction of what I call skin burn. Over time I've noticed my skin does not burn like it used to, I think it gets used to the friction and tolerates it better. Keeping it of when asleep helps. Carrying processors in a eye glass case is also better than the too large case provided by cochlear. It's a rather dumb case!

I can't hear voices over traffic, sometimes place such as bars can be difficult. I don't always hear in groups.

I often feel deaf, as I know when I have missed something, but not what it is I missed. When I wake up in the morning it's via a shake awake alarm clock, I shower and I remain profoundly deaf. I only really start being hearing for the day as I leave the house.

I did think my Lipreading skills would die, but they are still there still good enough to be able to Lipread from the other side of glass or from a good distance away.

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Re who would have thought 
Thursday, 2 February, 2012, 04:41 AM
Well I know I have not blogged for a while but to be honest there was nothing new to report. I still come across has very deaf at times, I think people at work are starting to realise that - which makes my life much easier.

I heard some new sounds this week. Fireworks while I was talking to my OH on the phone. Yep I heard fire works in the back group his end ! Who would have thought that would have been possible!

On the train I heard the driver announce a stop we were arriving at and it was incorrect making me laugh out loud. ( he announced we were arriving at a stop we had just left )

I can sometimes hear the person on the other end of other people's calls when I am on the tram.

Phone calls are getting easier each year.

Life s fun!

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re dooloop! 
Saturday, 20 March, 2010, 07:28 AM
I heard my partner's mobile sing to say it had a text.

Today I was expecting a call so I made sure it was not set to vibarate but to music.

My partner brought me a new nokia loop which has blue tooth. I tried it out with him calling me on his iphone and me using my oldish nokia. It sounded very clear and you can turn it up.

I tend to not use a loop when I call J but in a noisy enviroment it could be useful, or perhaps with someone I was not heairng as well.

I always use a loop with my work phone as it is an older phone and I cannot hear it without the loop.

*sigh*

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re mamma mia! 
Tuesday, 16 March, 2010, 02:52 AM
We went to a show last week in the City. It was so worth it. I was a little worried that I would not be able to follow it. I think I missed a little but most of it I got.

Later that week we watched the movie and there was a few things I missed that would of added to the experience but not much.

So now I want to go and watch it again! The cast were so talented, that it is worth going back to see it for the second time (not cheap though is it!)

In April we are going to go and see Cats!

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re sitting at the front of class - not any more! 
Saturday, 27 February, 2010, 01:57 AM
I did some training the other day, and found for
the first time in 33 years I did not need to sit at the front. In fact
I was really struggling at the front and couldn't figure out why. I
told a friend and she suggested I sat in the middle. and to my
amazement - it was just right, only problem was I then felt odd as I
am so use to sitting in the front!

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RE Yay website is back 
Friday, 26 February, 2010, 06:05 PM
We had a fire where the server is kept and the website went down for a bit. It was poor timing as I had heaps of new experiences, but was too lazy to write them down on paper. Now I can't remember all of them.

I am finding that when I hear an odd sound, most of the time after a good think I can identify it. The other day it was a tiny clock ticking.

I can hear other people's ipod music!

I over heard a conversation that someone was having on their mobile and heard both people speaking rather than just the one that I could see. (That was interesting)

I do not need to tell people that I am deaf as much (those who walk in to your life briefly) but I still tend to because it helps.

I am starting to realise that if I am having trouble on the phone some of the time it tends to be because they are in a poor cover area. Or they have a bad line, or they just have a really bad telephone voice. Itís not always me. I tend to tell most people that I am hearing impaired. Everyone I have told about my hearing loss, have gone out of their way to make sure we get to the end result which is so lovely because sometimes I want to give up on the call and they wonít let me! We get there in the end have a bit of a giggle to how hard it was and I thank them for their patience. Itís very rewarding to see people really try to accommodate for my needs.

Oh, when I do DIY with my partner, itís much easier now. He can be on the roof and I will be on the ground running around getting him things and I can hear him even when he is out of sight. Much easier!

We can turn the light of at night and chat, which is kind of romantic.

We can go on holiday and look at the stars light we did at Hamilton Island, and talk and talk with no need for a flash light. *sigh*

I have an email buddy who will have had her cochlear operation if all goes well on the 18th March two implanted simultaneously! Hopefully she is not to sore. Best of luck hon!


:)

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RE Music when shopping 
Thursday, 7 January, 2010, 05:17 AM
Last weekend I went shopping with my partner and his parents. We went to the new DFO at South Bank near the City. As I walked from shop to shop I really noticed the music that was playing. I canít say I could hear the lyrics particularly well or even identify the name of any of the songs. However, what I did notice was the music had a impact on my shopping mood/ habits. The cheerful boppy music made me feel good and more inclined to stay and try things on. The loud music made me leave the shop sooner. The calm relaxing music made me feel content and happy and I stayed longer. Any shop that had music that I have on my ipod, caused me to remain in the shop and also consider making a purchase.

Wow, I think thatís the first time I have ever had music influence my shopping habits.


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RE Happy New Year! 
Friday, 1 January, 2010, 05:48 AM - Rambling things
We had a wonderful New Yearís Eve as we flew business class from Sydney to Melbourne and had lunch in the first class lounge. New Year day was a bit odd as things did not go totally to planÖ Hopefully that is not a sign of things to come.

I did not have too much to drink, honest, but as I am typing this I have a headache. I have suddenly realised how much I do actually hear. Things actually sound too loud.

My head is pounding; as I rub the skin on my arms I can hear the rasping sounds under my hand. When I set down my coffee cup it clanks against the surface.

I can hear my hair whispering as I tuck it under my ear. I go to the sink and pour a glass of water, I can hear the rush of the water out the tap, then the drip as I turn it off and finally the glugging sound as it goes down the drain. Who would have thought a simple thing like turning on a tap could make so many different sounds!

As I type this I hear the keyboard clicking. I can hear the TV perfectly well in the next room. I can also hear my family from time to time commenting about the program.

It is raining outside; I can hear the rain hitting the sun roof. Outside Cicadaís are buzzing like mini chainsaws! Such a funny, amazing sound for such a small creature to make.

Soon the pain relief will kick in, but until then I wonít be turning off the processors. The sounds are too wonderful.

Happy New Year everyone!

X



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Re Xmas 2009 
Monday, 28 December, 2009, 04:29 AM
On Christmas Eve we went to feed the parrots at O'Rilley's. I was surprised that I could hear them making different sounds. I could also hear their wings as they took off or landed or flew by.

We also walked through the wet bush and I could hear insets and birds calling and the occasional frog. As we walked over the bridge to get to the tree house I could hear the wire bridge and the wooden planks creaking.

Today I found I was not only hearing sounds but also I was able to identify them. (Sometimes I find I hear a lot but I donít always know what I am hearing)

So sounds I identified were:
The dog drinking water
Wind chime from across the other end of the garden
Cicada's making a racket
Frogs and toads croaking
Insets buzzing
The cat meowing

I feel more connected to everyone these days, I hear whole sentences and if I chose to, I can be part of the conversation. Timing can be difficult as I am not always quick enough to have my say as I find I interrupt people / or I try and contribute but the conversation has moved on.

Another thing I have noticed this year is that I am hearing much better on the phone. I find I tend to hear the name of the person or I can identify them by the sound of their voice most of the time. I also have found that I am able to hear my partner James on the mobile in noisy places as long as he keeps his sentences short which is very handy.

It has only been a year since I had the second Cochlear Implant but I have noticed such a difference. I no longer have to hold myself sideways so that I catch sounds. I pretty much able to sit anywhere round a table (although old habits die hard and I prefer to have my back to the light so I can lip-read easily Ė I do find that I tend to lip-read more in noisy places and it is useful to do so.)

Soon Cochlear will be bringing out a new type of processor. It is thinner, shorter and uses two batteries, which can be re-charged. It appears to have abilities to have settings / programs which could be useful. I plan to give it a try when the test model comes out. I am thinking of buying it maybe in a year time to give Cochlear a chance to iron out any design flaws. It took them about three to six months to iron out the design flaws in the Freedom Processor i.e. cracked battery packs, rubber coming off the battery pack, split coils that needed regular replacing. I was fortunate as I was in the UK so they just kept replacing the entire processor. I understand that the damaged part would be replaced under warranty in Australia.

So all in all a very good year as a bilateral cochlear impantee.

All the very best to everyone for the New Year 2010!


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re first year review 
Tuesday, 8 December, 2009, 02:54 AM
Today I had my first year review. It seems impossible that the second implant is a year old today! It did me proud and scored 100% in the hearing tests with two processors in.

It got about 97% with noise and about 93% words, and 70 something with words with noise. This is about 2-5% better than three months ago as I got 100% then as well.

I told someone the other day that I had my 1st processor about 3 years ago, a quick check actually shows I had it 4.5 years ago! Time flys it just does not seem possible.

All up I am happy with two, I think I hear better and using the phone feels easier.

There is a new processor coming out so I will be back to tell you more about that soon

Happy christmas!


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re everything is so loud 
Monday, 18 May, 2009, 05:56 AM
I had to turn the volume settings down today. People's foot steps were driving me nuts. Paper makes such loud sounds.

On the plus side, I have noticed that I can really hear the words of lyrics on my ipod now, were previously I was not able to follow the song.

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RE whistling 
Wednesday, 18 March, 2009, 05:55 AM
I heard someone whistle today, I never realised how tuneful it could sound

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re ipod 
Wednesday, 18 February, 2009, 04:59 AM
I listen to my ipod most days on the train. Being able to hear instruments has been pretty amazing for me. I cant get over how different they all sound. I really like the song called "feel like making love" its got some great sounds and brought tears to my eyes the first time I heard it. it gets better every time I listen to it.

The song called "We are Australian" is also great to listen to.

I just need to get the following songs:

something stupid,
killing me softley
cant live if living is without you
I was only 18
everything I do, I do it for you
think twice

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RE I went to a night market 
Wednesday, 14 January, 2009, 06:17 AM
This evening I was invited to a night market by a friend from work. Two of her friends who I have never met also joined us. Normally when I am sat in the back of the car, I only get so much of the conversation. With two processors however, I felt I pretty much got it all. I started to realise that I could ask questions, I could contribute to a conversation that was going on that I had not started or lead. It was so amazing. Throught the evening I asked questions and heard the answers so often. Later on it got busier and loud and I think I was hearing much better than the others because I had the advantage of lipreading as well as listening. I may have confused my friend as she repeated a conversation for me she thought I had not heard. When in fact I had heard every word correct - but thought the topic of the conversation (salary sacrifice) was a confusing thing - not that I was confused. I notised that I had to speak loudly - but I did not really need anyone else to speak up as I could hear them quite well and lipread them even better. Aint life grand!

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re my very first head phones 
Wednesday, 14 January, 2009, 06:08 AM
My OH brought me headphones (suitable for hearing aids and processors) they have hooks, rather than the plugs you put in the ear.

I do not have anything to plug it into yet! So we plugged it into my OH's ipod and I could hear the music and some of the lyrics really well. If I got stuck or lost I could pull up the written lyrics which is so cool!

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re phone woes 
Tuesday, 13 January, 2009, 06:22 AM
I had a really strange experience today. I called a family in the morning and heard her fine. i called her in the afternoon and could not hear her at all! I think sometimes it depends on where they are when I call them which is always a pain with mobiles.

On a brighter note I called another family and heard her perfectly. It always seems to be much easier when they are not walking around or in a noisy enviroment.

That said I occassionly call a landline and can hardly hear at all. I put it down to the quslity of the phone - it can be very hit and miss.

I had the setting changed on my left processor - it now has a program where I do not have to press two buttons to get the loop working (just one click) and this makes it much easier to change when I need the phone. I am going to ask for it to be changed again so there is only two programs normal (1) and loop (2) that way when I click it three times it will go back to program 1 and there will be no need fo me to press another button to get the Tloop off. Role on 3rd map (20th)

I have recivced a application from VicRoads that require me to fill in a form about my medical health. I am hoping that this will not be a 12 month thing because my health has not changed since last time. If its every 12 months then that is a real pain (discrimination discrimination!) In the UK I only had to do it once, I had to agree to keep up my medical appointments (once a year) and if I could not prove that I was doing this then I would be disqualified which I thought was fair as there was no way I would miss an appointment because it tells you that the pacemaker programe is still fine and the battery life is as it should be. Ah well.

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My first iPod 
Thursday, 8 January, 2009, 06:09 AM
Today was my birthday, and I recived an ipod from my OH. It was so amazing to be able to flick through the songs and pull up the lyrics. For some of the song I could follow it, but ever so often I would get lost when the music over powered the lyrics. Its so great to be able to just go to the written lyrics for back up. I played it the whole way to work while on the tram. I have never felt so alive, and so real. There were times when the music sounded so wonderful that I wanted to burst into tears. Later that day I felt really overwhlemd, almost depressed and emotional, I felt like I could burst into tears at any moment. I just could not figure out why I was feeling this way. Then I remembered how I felt listening to my iPod and realised it was not really depression I was feeling, just a sense of being so overwhelmed and raw. I kinda understand where hearing people are comming from when they say they would not be without their music. It can be inspiring to listen to music that is so beautiful and so uplifting. It can change or alter ones emotions. Yet at the end of the day I know my life will not end if I am without it, although it would be a struggle and yes I would miss the sounds I have gained. Its not something I take for granted, I know hearing is not a god given right. At least there are still options open to me if the worst ever happened. I sure am enjoying every sound, even now as if it is for the first time.

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re so much has happend 
Monday, 5 January, 2009, 06:02 AM
Ah so much has happend and it got so busy!

Any way, I was waiting for it to be switched on and... nothing....and I waited and waited and waited. Then the audio tech realised that she neeeded to change a setting, but did not let me know this. So I started to worry that it was not working! Eventially it was already to go and it was switched on..... And the audio asked "how is it for you" and I HEARD EVERY WORD!!!!!! YAY.

Later that evening my OH and I tested it and we found that on its own with my eyes closed I could not pick out single words. However, with it turned on with the left one, I found it much easier.

Two weeks later we did the same test and I could hear every random word he said. We tried two words, then three then whole paragraphs and I was fine!

About two-three weeks in, I went for a coffee at work and found that I could not only keep up with the conversation I could also hear the accent fine too. The background noise was loud for me, but it did not over power the speech sounds which was so amazing.




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RE Switch on! 
Monday, 22 December, 2008, 07:19 PM
Today was my switch on day. I was really nervous! My partner came with me. First we checked all 22 electrodes worked, (they do) then I had to say when I heard a beep. Then I had to check each three sounded balanced. Then I had to set the sound to go up as far as it was comfortable to do so. Then it was switched on...........to be continued

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re realiseation 
Sunday, 21 December, 2008, 12:58 AM
All my life I have wondered why people stare at me. When I was younger I thought I must have been really ugly or my forehead was too big. Some people would even look back as they walked pass. I have since found out that it was more likly that they were wondering why I was making such a loud squealing sound. It never occured to me that it surprised people when the hearing aid gave out feedback. Had I realised sooner I think I would have been a much more confident child and teen growing up.

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